Ryan Galvin has a very special heart. In the entire United States only 50 - 100 people have the specific heart condition that 5-and-a-half-year-old Ryan has.
When Ryan’s mom, Amy, was 20 weeks pregnant with him, she and her husband, Bill, learned that their baby had congenitally corrected transposition of the great arteries (CCTGA). That means that both ventricles, the lower pumping chambers of the heart, are reversed.
Ryan was born without any complications; however in October 2015, Ryan said that his heart “was beating too fast.” Ryan was having episodes of Supraventricular Tachycardia, and his heart rate was 244 beats per minute. Doctors tried several different ways of correcting the arrhythmia, and ultimately were successful when Ryan held his breath and plunged his face in ice water for 10 seconds.
Ryan was then diagnosed with Wolff-Parkinson-White Syndrome. Only 1% of the people in the United States that are diagnosed with CCTGA also have WPW, making Ryan’s heart condition very rare.
Ryan visits his pediatric cardiologist, Dr. Colon, every six months for echocardiograms, EKGs, and a Holter monitor. Ryan never misses his three doses of medication per day … he knows it helps to keep his heart beat in regular rhythm.Ryan has a smile as wide as all outdoors. He enjoys sports, especially baseball and swimming, reading books, coloring, crafts and cooking. He also loves playing with his younger siblings, Connor and Carolyn. Please join us at the Capital Region Heart Walk to meet our Heart Hero, Ryan, and help his special heart keep on beating.