We are raising money for tapvr our son coltan was born June 13 2023 and he is how we found out about tapvr.
TAPVR occurs when the pulmonary veins bringing blood back from the lungs do not connect to the left atrium. Instead, they go to the heart by way of an abnormal (anomalous) connection.
In a baby with TAPVR, oxygen-rich blood from the lungs returns to the right side of the heart. Here, oxygen-rich blood mixes with oxygen-poor blood. This causes the baby to deliver less oxygen than the body needs.
To survive with this defect, babies with TAPVR usually have an atrial septal defect (ASD), which is a hole between the right atrium and the left atrium. An ASD allows the mixed blood to get to the left side of the heart and pumped out to the rest of the body. Some children can have other heart defects along with TAPVR, aside from the ASD.
A baby with TAPVR may need surgery or other procedures soon after birth. Therefore, TAPVR is considered a critical congenital heart defect (critical CHD).
There are different types of TAPVR, based on where the pulmonary veins connect:
Supracardiac: In supracardiac TAPVR, the pulmonary veins come together and form an abnormal connection above the heart to the superior vena cava. The superior vena cava is a main blood vessel that brings oxygen-poor blood from the upper part of the body to the heart. In this type of TAPVR, a mixture of oxygen-poor and oxygen-rich blood returns to the right atrium through the superior vena cava.
Cardiac: In cardiac TAPVR, the pulmonary veins meet behind the heart and connect to the right atrium. The coronary sinus is a vein that helps bring oxygen-poor blood from the heart muscle back to the heart. The coronary sinus helps connect the pulmonary veins to the right atrium in this type of TAPVR.
Infracardiac: In infracardiac TAPVR, the pulmonary veins come together and form abnormal connections below the heart. A mixture of oxygen-poor blood and oxygen-rich blood returns to the right atrium from the veins of the liver and the inferior vena cava. The inferior vena cava is the main blood vessel that brings oxygen-poor blood from the lower part of the body to the heart.
coltan had his surgery at nationwide children's hospital we love them up there they saved our sons life. They are about 1 in every 7,552 babies in the United States are born with TAPVR1. This means that about 486 babies are born with TAPVR each year.
