Chloe's Courage♥

Our Chloe is our why…she is a sweet, strong, and full of life 10 year old. You would never know everyday she fights to be normal.  She was diagnosed at the age of 4 with Marfan Syndrome.  It affects everything connective tissue in her body…joints, bones, blood vessels, eyes, etc…. and unfortunately her heart.  Chloe has had 8 major surgeries since the age of 3 on her spine, feet, and mouth.  She has been on heart medicine since the age of 4 to help slow the progression of her heart disease.  We found out this last year that her heart is struggling a little bit but we continue to be hopeful.  If you met Chloe you would never know the struggles she endures everyday.  She is truly a fighter, full of smiles, and captures the goodness in every day.  She has made us realize that everyday is a gift and she has helped our family find the blessing in every moment in life.  Our blessing is that we have Chloe,  we know her diagnosis, we know how to manage it, and we hope to help another family raise the awareness and know the symptoms.  Knowing the signs we can save a life♥