MAZIE'S STORY
? Mazie was diagnosed at our 20 week anatomy scan with Heterotaxy which is an abnormal arrangement of organs often causing CHDs. After getting a fetal echocardiogram and seeing a Pediatric Cardiologist we were told Mazie had Hypoplastic left heart syndrome, one of the most severe forms of CHDs. We later learned she also had Coarctation of the aortic arch.
Despite everything they were seeing on echo indicating otherwise, our Amazing Mazie?s heart continued to grow on the left side in utero and was only mildly small at birth. Once she had normal circulation her left side expanded more and she has 4 normal-sized chambers!
Mazie had an open heart surgical repair for the coarctation of the aorta at 4 days old. Surgery for malrotation of her intestines at 3 1/2 months old and she continues to be monitored for a subaortic membrane that will require another open heart surgery in the near future.
WHY WE ARE MARCHING
? Research advancements have led to a 37.5% decline in CHD-related deaths in the U.S. since 1999.
? CHD is the leading cause of birth defect-associated infant illness and death yet grossly underfunded.
? Further research is needed in specialized fields to improve outcomes and reduce mortality rates.
To advance the diagnosis, treatment, and prevention of congenital heart defects (CHDs) by funding the most promising research.
How You Can Make a Difference
? Your donation can help fund critical research and programs that improve survival rates for babies born with CHD.
? By joining our team, you can help spread awareness, educate others, and advocate for better screening and research.
? Together, we can improve these statistics and provide a better chance for CHD warriors like Mazie.
Donate Today and Join the Fight Against CHD!
Your support makes a world of difference in the lives of children born with CHD, providing hope, funding, and a chance for a brighter future.
