As most of you know, our "Handsome Hank" was born with d-TGA, or Transposition of the Great Arteries, a congenital heart defect that occurs in 1 of every ~4000 babies. With d-TGA, Hank's pulmonary artery and aorta were transposed (essentially flip-flopped). When he was just 6 days old, he underwent open heart surgery, an arterial switch, with Dr. Frank Scholl at Joe DiMaggio Children's Hospital.

Though he's a goofy, climbing, running, giggling, snacking toddler today, he has already been a trooper through a number of challenges in his almost two years: five cardiac catheterizations, one additional heart surgery to repair an aortic coarctation, an ongoing diagnosis of severe pulmonary hypertension, a month-long stay in the CVICU, a handful of other associated hospital stays, and countless follow-up appointments with cardiology, pulmonology, gastroenterology, genetics, and speech therapy.