Saturday, April 24, 2021
Team Char1 Members
Why We Walk
2021 Mid-South Heart Walk
Many of our close family and friends know that when Charlotte was just 5 days old, she was diagnosed with 2 congenital heart defects - a bicuspid aortic valve and aortic dilation (enlarged aorta). Charlotte has had 5 echocardiograms since birth and at 6 months old, began a beta blocker taken twice a day with the intent to keep her blood pressure "in check" so that the aorta doesn't receive unnecessary stress and risk for rupture. There have been many unknowns Charlotte's first year of life as she grew rapidly and what that growth would mean for the size of her aorta. We were and still are unsure if surgery will be in her future to repair or replace her aorta, if genetic testing will be needed to determine if there is an underlying connective tissue disease (can be at times, commonly found with this type of congenital heart defect) and any potential implications on her quality of life. I made the very unfortunate mistake of turning to Google for answers one very low day after a cardiologist appointment and found myself scared by what an outcome for Charlotte's life expectancy could have been had the nurse in the L&D wing not heard the heart murmur just as we were about to discharged from the hospital after her birth. That nurse will forever be an angel to Chris and I.
We are SO grateful for the care Char has received thus far at Le Bonheur Children's Hospital and the entire Pediatric Cardiology group - based on her last cardiologist appointment, we know the beta blocker is doing it's job as the size of the dilation as somewhat slowed! We remain steadfast in our prayers that this continues to be the trend at her next appointment in August! We feel really encouraged for outcomes, treatment as well as what her life will be! We know the Lord made Char wonderfully and fearfully made and He will provide what she needs always!
Chris and I both understand the importance for non-profits like American Heart Association and what events and fundraising can do to move the needle on detection, treatment and outcomes - in our case, congenital heart defects.
We hope you will support Team Char by lacing up your sneaks and hitting the pavement for a walk in your neighborhood on Saturday April 24th or considering making a contribution to this very important work! The Heart Walk is a time of celebration, joy and inspiration. People unified in support of a single goal: to see a world free of heart disease and stroke.
Heart disease is the No. 1 killer worldwide and stroke ranks second globally. Please join our team or donate today and help us change this statistic.
Be a Heart Walk Hero with us and together we’ll help save lives.