Event:
Saturday, May 11th
Team Coach:
Company Affiliation:
I HEART Tilly Club13 Members
We Walk to Save Lives!
2024 Northshore Heart Walk
I HEART Tilly Club
Matilda “Tilly” Anne Butera was born on December 26, 2023 with Tetralogy of Fallot with Pulmonary Atresia.
TOF with Pulmonary Atresia accounts for only 2% of all Congenital Heart Diseases. On January 12, Matilda had a successful open heart surgery to fully repair her heart. A miraculous 8 days later, we were home. Tilly’s resiliency and quick recovery has confounded us all, especially her care team. We firmly believe it is the power of prayer that has gotten us to where we are today. We have quickly settled into life as a family of four. Big sister, Emilia, is president of the “I 'HEART' Tilly” fan club.
Our family is eternally grateful to the medical team that diagnosed and treated our baby girl. The advances in congenital heart research made it possible for Tilly's heart to be fully repaired. She will, however, need more surgeries as she grows. We fundraise for research so Tilly and all kids like her can grow up and live big!