I was diagnosed with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) at 17 years old. ARVC is a rare, inherited heart disease that causes the heart muscle to gradually be replaced by scar and fatty tissue, most commonly affecting the right ventricle. This damage can disrupt the heart's electrical system and lead to dangerous abnormal heart rhythms, heart failure, and, in some cases, sudden cardiac arrest.

Because ARVC is a genetic condition, it often affects multiple members of a family. In my case, a family member and I share this diagnosis, highlighting the importance of genetic testing, family screening, and early detection. Many people with ARVC may not know they have the condition until symptoms appear, which can include palpitations, dizziness, fainting, shortness of breath, or chest discomfort.

Being diagnosed as a teenager changed the course of my life. I have been living with ARVC for 12 years and am now 29 years old. Over that time, it has been a life-altering condition, requiring ongoing medical monitoring, adaptation to health limitations, and learning to navigate the uncertainties that can come with a lifelong heart disease. More recently, I have entered the early stages of congestive heart failure as a result of ARVC, adding another challenge to my journey. While the diagnosis has presented significant obstacles, it has also strengthened my appreciation for the importance of heart health research, patient advocacy, and support from family, friends, and healthcare professionals.

I am proud to support the American Heart Association's mission to advance research, improve treatments, and raise awareness of heart diseases like ARVC. Through education, early diagnosis, and continued scientific progress, we can help improve outcomes and provide hope for individuals and families affected by inherited heart conditions.