I walk in memory of my son, Steffan!

Steffan, with his twin, Cameron were born at 26 weeks. Steffan was only 2 pounds 1 ounce at birth and had many struggles to overcome including TAPVR.  (TAPVR) Total anomalous pulmonary venous return is a congenital (present at birth) heart defect.  Babies with this heart defect cannot supply enough oxygen-rich (red) blood to the body after birth. Without an additional heart defect that allows mixing of oxygen-poor (blue) and oxygen-rich (red) blood, such as an atrial septal defect, infants with TAPVR will have a mixture of oxygen-rich (red) and oxygen-poor (blue) blood circulating through the right heart and back to the lungs—a situation that is fatal.  A heart surgery is required within the first few weeks after birth. The doctors needed Steffan to reach 5 pounds before operating on him, unfortunately he did not make it to that weight.  My sweet baby passed away after living only 18 days.

Please consider joining my team to raise awareness and funds or donation to my page. Thank you!