I am walking because my daughter and son were born with heart defects. Alexis is 15 and was diagnosed at 4 days old. She was born pink but went downhill. We took her to the er where she was diagnosed with a enlarged heart. We then found out it was a VSD (a hole in the bottom chambers) and coarctation of aorta. She is currently following yearly and doing amazing! 

My son Allen is 4. He was diagnosed inurtero with what they thought was Ebsteins anomaly. After he was born he was officially diagnosed with tricuspid valve dysplasia asd and pulmonary artesia. His first surgery was when he was a week old. His second surgery was 4-5 months old. He currently has a g tube where he got most of his nutrients to grow and thrive. He's currently in preschool and doing amazing. He's scheduled for his Pre-Fontan MRI and cath April 8th. And his Fontan will be sometime this summer.

Allen had his fontan May 25th 2021   He spent 3 weeks in the hospital after his surgery    He has dealt with reoccurring pleural/chylo effusions since his 3rd surgery     He is currently on the waiting list at CHOP to undergo a lymphatic procedure to help with the effusions.   He was just recently referred to The Heart transplant clinic so they can keep an eye on things as well   

I walk because I know that with every step, I'm making a difference in someone's life. And when combined with a million other Heart Walk Heroes across the nation, we have an even greater impact toward curing heart disease and stroke. Will you be a Heart Walk Hero with me?

Your donation will fund groundbreaking research that literally keeps hearts beating and helps people have longer, healthier lives.

Have a heart and help me reach my goal today!