My Heart’s Journey: A Survivor’s Story

In my freshman year of high school in 2009, I was diagnosed with a bicuspid aortic valve. That same year, I had a cardiac ablation for SVT. The doctors said it was a “wait and watch” situation, and that I would probably not need further intervention until I was in my 50s or 60s. I carried on with life, grateful for the early heads-up.

When I became pregnant with my son, I developed preeclampsia. After his birth, I faced serious complications—blood clots in my leg that traveled to my lungs (a pulmonary embolism), followed by heart failure. I was told I would need valve replacement surgery before the year ended. With a newborn at home, that news was overwhelming. I sought several opinions and ultimately learned I was likely dealing with postpartum cardiomyopathy. Over time, my heart function began to improve.

The following years brought ongoing challenges with my heart. Valve replacement was recommended again more than once, but after careful consideration, those turned out not to be the right step at those times. I continued to monitor my health closely and advocate for thorough answers.

In October 2023, I experienced temporary vision loss in one eye, along with confusion and brain fog. At the emergency room, I was diagnosed with a stroke. In December 2023, I had a PFO closure procedure, as that was believed to be the cause. An MRI afterward revealed I had also had multiple silent strokes. It was a lot to process.

Today, I am at my healthiest point in years. My heart function is improving again, and I feel stronger. I’m deeply grateful for listening to my instincts, for the excellent care I received from the doctors at KU, and most of all, for the steady love and support of my husband and family. They have been with me through every appointment, every uncertainty, and every step forward.

This experience has shown me the importance of speaking up for my own care and surrounding myself with a strong support system. I’m walking in the Heart and Stroke Walk to honor the journey, to celebrate how far I’ve come, and to support others facing similar challenges. Every step reminds me that healing is possible and that we don’t have to walk alone.

Thank you for being part of this meaningful cause.