We are about 2 months away from the heart walk. Our family sees this as an opportunity to increase awareness for our boys heart condition. No pressure to donate, just join our team and come walk with us!
A reminder why our family walks:
Charlie and Finnlie were both born with holes in their hearts and Wolff-Parkinson-White Syndrome (WPW). Charlies was discovered at 7 weeks old while Finnlies was discovered shortly after birth. At this time, Finnlie has been medication free for 5 months and no identified breakthrough SVT. Charlie has had an increase in SVT episodes and has had his medication dose upped twice in the last 5 months. Charlie is still headed for an ablation. Due to the dangerous location of his extra pathway, we are trying to let his heart grow as much as possible before this procedure.