We Heart Walk for Congenital Heart Disease Awareness!

 

Leona and Evan are the miracles in our lives. Our families have been connected through friends and shared experiences. We want to spread awareness and show the community that you are not alone in this journey.

 

Leona was born with an AV canal defect that required surgery in the first couple months of life but after cardiac arrest in recovery, she was left with a weak heart. She was able to stay at home for a few years on medication but after a viral pnemonia her heart went into failure. And she was listed for a heart transplant. May 2017 she received her gift of life! Leona also has a younger sister, Miriam, who was born with Hypoplastic Left Heart Syndrome with an intact atrial septum. Her disease was severe and we only got five beautiful weeks with her. We walk in her honor.

 

Evan was born with Hypoplastic Left Heart Syndrome and required multiple surgeries to redirect blood flow. Unfortunately, his heart function disminished and he had his first transplant in 2019. Evan's first miracle heart gifted him five wonderful years. He received his second miracle heart in 2025 after developing severe coronary artery disease. He is currently doing great!

 

Surgeries and transplant are not a cure for these kiddos born with Congenital Heart Disease. It is something they will need lifelong treatment and/or medication for to remain healthy and sometimes that still isn't enough. As our kids and yours get older, they will need to keep their hearts healthy. Education and community will help us all be a healthier version of ourselves. 

 

Let's walk together to spread awareness! Join our team. Support our heros and help us make them feel as special as they are!!